類別:/親子教養.
 (版權窗口 繁體: Mingming  簡體: Jianmei  )
IMMORTAL BIRD: A Family Memoir
不死之鳥
作者:Doron Weber
版本: 精裝368頁  2012 年 2 月  Simon & Schuster出版
ISBN:9781451618068
內容介紹

諾貝爾文學獎得主Toni Morrison特為文推薦 “A powerful and lyric portrait of a son and a vibrant family.”

  或許我終將戰勝病魔,或許這三年的奮鬥不會白費。或者這是生命的終點. . .”  

摘錄自Damon Weber的部落格文章, 20045

另一新的病症,他的成功故事面臨了更黑暗且更戲劇化的考驗。

另人鼻酸的是,Damon生前還是來不及看見HBO影集「化外國度」的播出,因為當時他已入院,並不幸在十日後離開了人世。

面對病魔再度來敲門,Damon並不因此屈就於醫院的定期檢查報告。他證明了自己的表演天才,還在名製作人大衛.米奇(David Milch)HBO影集「化外國度」(Deadwood)中擔任一角,並於體能許可下盡量參與社交生活。然而,作者Doron Weber仍為進入成年的Damon擔憂苦惱,為了拯救愛子的生命,他持續和時間賽跑,對抗著不完備的健保體系,希望能及時解除Damon的生命危機。

 

家人的愛是小男孩Damon Weber努力求生的心靈支柱。他是個優秀的孩子,除了天生擁有表演細胞外,也是班上同學公認的領導人物。Damon一出生就患有先天性心臟病,在嬰兒時期就動了心臟手術。儘管如此,他樂觀而獨立,向來是父母Doron Shealagh眼中的驕傲。然而,Damon在青少年時期被診斷出

 

《不死之鳥》來自一位慈父對愛子刻骨銘心的真情自白。作者Doron Weber為了挽救兒子Damon Weber的生命,長期承受著內心的無比煎熬,不畏艱難與現實對抗。患有先天性心臟病的兒子天資聰穎,但卻處在生命的危機邊緣。這個感人肺腑的真實故事,彰顯了一位小男孩對生命和家人的熱愛,並描述了先進醫藥的風險,和親情在不可知未來下發揮的偉大力量。

作者介紹

作者Doron Weber出生於以色列、成長於紐約,他於布朗大學(Brown University)和牛津大學(Oxford University)受教,曾獲得「傅爾布萊特獎學金」 (Fulbright Scholarship)Doron Weber當過送報生、餐廳雜役工、店員和計程車司機。

他在慈善基金會“Alfred P. Sloan Foundation” (此為贊助科學和教育的民間機構)工作長達十五年。

Doron Weber的文章和評論散見於《紐約時報》(The New York Times)、《今日美國》(USA Today)、美國財經雜誌《Barron's》、和《波士頓評論》(the Boston Review)等.

他也是三本非小說類書籍的共同作者,包括:《Safe Blood: Purifying the Nation’s Blood Supply in the Age of Aids(Free Press, 1990)、《The Complete Guide to Living Wills(Bantam, 1991)、和《Final Passages: Positive Choices for the Dying and their Loved Ones(Simon & Schuster, 1992)

 

書評

 “A powerful and lyric portrait of a son and a vibrant family.”—Toni Morrison


“I was seized by Doron Weber’s prose….We’ve gained a book of rare passion.”—Nancy Milford, author of Savage Beauty and Zelda

“I found it almost impossible to read this book, or even to see the pages, at times, through my tears. It was equally impossible to stop reading it—to turn away from its red-haired teen hero or the voice of his adoring father. The boy Damon, whose lifeis delimited by his damaged heart, emerges here as the grandest spirit in a small body since Antoine de Saint-Exupery imagined The Little Price.”—DavaSobel, author of Longitude

“Immortal Bird is the best portrait of a childhood I’ve ever seen, and a moving and unforgettable evocation of the intense love between a father and a son.”—Richard Rhodes, author of The Making of the Atomic Bomb

“In language at once vivid [and] heartfelt…Weber recounts the medical battle that followed [his son’s heart condition] while powerfully conveying his love for his son. This one will disrupt your sleep.”—Library Journal Pre-Pub Alert

“A heartsick father's poignant account of his heartsick son, and a primer on the fragility of life.”—Kirkus Reviews

“[A] detailed, harrowing narrative…a tender, clear-eyed profile of his son…Weber’s heartbreaking story gives us both a tragic cautionary tale and a moving account.”—Publishers Weekly